Thursday, October 30, 2008
So, some of her most recent zingers...
'what the hell are they building over there'? - This was in reference to the new Dial building on Scottsdale and 101 as we drove past to meet up with Papa at Lonsdales Cigar Bar.
'where the hell are we'? - This was said to Sean as we drove home from his bday dinner back in July.
'what the hell is that thing doing there'? - In reference to a Coca Cola Trailer outside the WalMart.
So I ask you, what the hell is going on around here?! lmao!
Wednesday, October 29, 2008
She is having so much trouble coming up with the right words to use. She has had this trouble as long as I have known her (5 years), but it is horribly bad now. Then when she comes up with a word its still not the right word and makes absolutely no sense to those of us who are trying to figure out what she is saying. Then she will try and spell the word that she is looking for only to have the letters she puts together make no sense and most of the time they don't even spell any word, they are just random letters. I know its frustrating for her, but its so frustrating for us too because we can't figure out what she is trying to say! Communication is really so important and we are struggling with it right now. On top of the communication lacking, we are also trying to get her to understand that she doesn't get to go home. She is here for good. She argues with us that she can take care of herself and that she has friends back in Iowa who help her. We are trying to avoid talking about it with her at this point because we don't want to argue it. She doesn't remember or retain what we have said and it just frustrates all of us when she insists that she is going home soon. So we are just telling her we will see in the future how things are going and decide then. She doesn't remember doing things like putting her seatbelt on once she has done it. Its just a struggle everyday all day.
I have started 'caregiving' journals for both gramma and MIL so that if we ever get some respite care, I will have these to print out for the volunteers to be aware of issues and other things. It helps to get things out and be able to read through them and see if we can thing differently or whatever.
MIL has her first appt with her new oncologist on Friday, so hopefully we will have a better idea of what we are up against after that. We have not gotten a detailed diagnosis for this most recent cancer or a prognosis. We will also be asking the oncologist for the order for Hospice care to start that right away.
Alright, so I feel better getting some of this out...I am hoping it will be a resource for me to use to keep my sanity about me!
Tuesday, October 28, 2008
After a while, MIL and GMA got up and started walking off to a ramada area and were complaining that it was too hot and their brains were cooking. So I can't win by staying indoors with them, they complain about the inactivity. I also can't win by taking them to the park to either sit and talk or walk or whatever they want to do while Hannah plays.
So we came home and now everyone is relaxing and I am worn out. Tomorrow is the library, lets hope they won't be able to find anything to complain about at that outing.
Monday, October 27, 2008
I have thought about taking a trip to the library, but I want to save that for Wednesday because that is when there is a storytime. I am just at a loss. Maybe I will suggest going to the park, Hannah can play and the rest of us can enjoy some time out in the fresh air and sunshine.
Sunday, October 26, 2008
Saturday, October 25, 2008
Last weekend, I took Hannah to a PhoenixMommies Pumpkin Patch event at a local farm (tomalchoff farms), there were animals and train rides and a bounce house, face painters and balloon swords, corn mazes and fresh vegies to buy.
Lets just say that Hannah must take after me in the city girl department because the farm was not my cup o'tea or hers. She couldn't stand how 'scratchy' the hay was when I put her on it to take the picture so she wouldn't even look at me! We didn't stay very long, but we did get some nice fresh corn and a big pumpkin!
Although I do get a lot more housework done when he is not here. Sean and MIL are flying home today and I have been up almost all night doing laundry (which usually doesn't get done til Sunday!!) and I am happy to say that I only have 2 more loads ot wash, and I have already folded and put away 2 loads with another going into the dryer in about 5 minutes. Yay me! (does anyone else hear London Tipton's voice when I type that??).
Friday, October 24, 2008
Then, we got ahold of things and for about $10 and a little elbow grease, this is what it looks like now...
aahhh, can't you just feel a difference looking at the two? I mean, its unreal. It makes the whole house feel less trashy!
Stay tuned for more fix - it - up projects before and afters!
Lo and behold, I found these beauties for a total of $7
I am planning for the wooden chair sanding and painting and then sanding again to give it that distressed look. For the cube one I will probably recover it in some great (cheap) fabric or just get a bunch of great fabrics to drape over it depending on the shot I am looking for.
I have a feeling tonight is gonna be a LOOOONNGGG night. Hannah is sleeping on the air mattress that is setup in the living room from out slumber party last night and so I get to sleep on the couch. I have to be up at 7 am though because dad has a guy coming at 730am to hang a new door on MIL's room. So I am just hoping to get some sleep tonight and have tomorrow go by faster than today did.
Wednesday, October 22, 2008
A quick update on MIL, she was discharged from the hospital this evening and is now at her apartment with SIL.
Thank you to everyone who has been keeping us in your thoughts and prayers. I really appreciate it!!
Monday, October 20, 2008
Hannah is having a really hard time and therefore I am having a super hard time. I have been crying most of the afternoon. Its like once the floodgates opened, there was no going back.
So, my SIL and the kids will be spending the night with us Thursday night to have a slumber party to get mine and Hannah's minds off everything that is going on and then by Saturday afternoon Sean and MIL (Marilyn) will be back here.
So at this point we are still looking at her getting here Saturday.
Now, we are just needing to get her care transferred probably to Barrow or Mayo but most likely Barrow since this is all linked to neuro stuff.
She is getting her hospice consult today as well so hopefully we can get her on that quickly. She doesn't want treatment of the solid mass at all, only is getting the treatment of this cyst like one to try and alleviate the pressure and some of her symptoms.
Sunday, October 19, 2008
Now to backtrack a bit with MIL, she has had cancer 3 times. The most recent was just over a year ago. It was a recurrence of sinus cancer that she had about 5 years ago. She had asked for our opinion on what she should do a year ago and we asked her to fight it. Do chemo for a while to see if that would take care of it because for other reasons she cannot have surgery because she would stroke out and die on the table and she has had too much radiation from previous cancers that she cannot have more. So chemo was our only option. She did chemo for several months and it showed that the tumor wasn't changing so she stopped. They did routine scans to see what the tumor was doing and for the first couple of scans it did nothing. Wasn't growing at all so they didn't do anything. So that brings us to now. They did the MRI and found that the tumor has indeed been growing since the last scan and is now putting pressure on the base of her brain and causing the fluid and swelling of the brain.
So we are at the point now of figuring out the best way to get her from Iowa to Arizona and continue her care here as she is refusing all treatment. We are hoping to get her on hospice either today or tomorrow. We have talked to her doctor yesterday and asked them to get the ball rolling to get all the paperwork started and all of that.
I guess I just need prayer right now. I know that caring for one older person with dementia and other issues is hard, but two? I must be out of my ever lovin mind. I am trying to keep it all together, but I also recognize I need to take care of me or I will be no good to anyone, most importantly my 4 year old daughter. Ok...tears...so if you could, please keep me and my family in your thoughts and prayers...we sure do need it. Thanks for reading all this!
Monday, October 13, 2008
The newest changes are that I retired from The Mommies Network. I decided I had way too much going on in my personal life right now to worry about climbing ladders and building a resume right now. So I am still the SA for PhoenixMommies, but I no longer hold any other positions for TMN. I feel really relieved. I was so overwhelmed, but I knew that something had to give and this was the only thing that could.
Anyway, had a Maternity shoot today ( I will be posting the pics on my other blog!) and have a family / couple/ nursing session this coming Sunday. So I will now get to spend a lot more time on my photography...hopefully!
Friday, October 10, 2008
Now, for the life altering news...my MIL is moving out here in 2 weeks to live with us. Yes. This means I will now be the caregiver for my 74 year old Gramma and my 69 year old Mother In Law. Things are a bit stressful around here right now with trying to get the house ready for our new roommate, but we really feel this is in the best interest of everyone.
Anywho, in other news, I have cast my ballot already for this election coming up in November. Thank God. Now if all the political ads would just quit. I am so sick of hearing about it.
We got Hannah's costume for Halloween tonight, she will be a bunny/princess. She couldn't make up her mind and didn't want to wear the bunny costume without the princess skirt, so we are improvising and she is the Bunny Princess.
We planted the first thing in our new vegetable garden today, so excited! Our tomato plant! Will show pics in another post. We are hoping to get carrots, broccoli and a few other things planted soon in our new garden. We are also becoming more 'green' than I ever imagined I would become. We recycle, we compost, we don't use paper towels anymore, we garden to grow our own vegies...insane I know.